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Complete Health Indicator Report of Spina Bifida

Definition

Number of children born with spina bifida per 10,000 live births to women residing in New Jersey in a specified time interval.

Numerator

Number of children born with spina bifida among live births to women residing in New Jersey in a specified time interval.

Denominator

Count of all live births to women residing in New Jersey in a specified time interval.

Why Is This Important?

Spina bifida is a neural tube defect caused by the failure of the fetus's spine to close properly during the first few week of pregnancy. Research with humans and animals suggests a genetic basis for the defect. It is considered likely that spina bifida results from the interaction of multiple genes and environmental factors. Research has shown that lack of folic acid is a contributing factor in the pathogenesis of neural tube defects, including spina bifida. Supplementation of the mother's diet with folic acid can reduce the overall incidence of neural tube defects by about 70 percent.

Available Services

Early Intervention System: The New Jersey Early Intervention System (NJEIS), under the Division of Family Health Services, implements New Jersey's statewide system of services for infants and toddlers, birth to age three, with developmental delays or disabilities, and their families. The Department of Health (NJDOH) is appointed by the Governor as the state lead agency for the Early Intervention System. [http://www.nj.gov/health/fhs/eis] Since 2008, NJEIS has regionalized the system's point of entry for referral of children, birth to age three, with developmental delays and disabilities. Families and health care providers can call 1-888-653-4463 to refer a child to the NJEIS. NJDOH Family Health Services Case Management Units: Each of New Jersey's 21 counties has a Special Child Health Services (SCHS) Case Management Unit. SCHS Case Managers, with parental consent, work with the child's parents and physicians to evaluate an affected child's strengths and needs; and develop an individual service plan for the child and family. Medical, educational, developmental, social and financial needs of the child and family are targeted. NJ Department of Health, Special Child Health and Early Intervention Services, PO Box 364, Trenton, NJ 08625-0364, Phone: (609) 984-0755, website: [http://www.state.nj.us/health/fhs/sch/] Catastrophic Illness Relief Fund: The Catastrophic Illness in Children Relief Fund is a financial assistance program for New Jersey families whose children have serious illnesses or conditions not covered by insurance, state or federal programs, or other funding sources. Contact the Catastrophic Illness in Children Relief Fund Program: 1-800-335-FUND (3863)

Data Tables


Prevalence of Spina Bifida in Children Born to NJ Resident Mothers, Statewide Rates, 2000-2019

YearRate per 10,000 Live BirthsNumer- atorDenom- inator
Record Count: 20
20002.0824115,542
20011.9923115,769
20022.0123114,641
20031.7120116,823
20042.3627114,443
20052.2025113,651
20063.1436114,665
20073.5441115,920
20083.1135112,428
20093.1034109,543
20103.6639106,571
20112.8430105,474
20121.7318103,778
20132.4425102,326
20142.1422102,813
20151.8619102,021
20160.9810102,472
20172.0821101,073
20181.0911101,149
20191.111199,305

Data Sources

  • Birth Certificate Database, Office of Vital Statistics and Registry, New Jersey Department of Health
  • Early Identification and Monitoring Program, [https://www.nj.gov/health/fhs/sch/ Special Child Health and Early Intervention Services], Division of Family Health Services, New Jersey Department of Health


Prevalence of Spina Bifida in Children Born to NJ Resident Mothers, by County, 2010-2019

CountyRate per 10,000 Live BirthsNoteNumer- atorDenom- inator
Record Count: 22
Atlantic1.64530,460
Bergen1.301292,369
Burlington**< 5 cases44,374
Camden1.921262,369
Cape May**< 5 cases8,642
Cumberland3.01619,930
Essex2.3324103,067
Gloucester**< 5 cases29,727
Hudson2.0621101,955
Hunterdon**< 5 cases9,360
Mercer**< 5 cases41,385
Middlesex2.011994,473
Monmouth1.52959,166
Morris1.72846,530
Ocean1.781584,041
Passaic1.17868,433
Salem**< 5 cases6,850
Somerset1.80633,263
Sussex**< 5 cases12,311
Union4.122867,930
Warren**< 5 cases9,496
New Jersey1.851901,026,131

Data Notes

**Counts and rates are suppressed when counts are below 5 due to instability of rates. Observed differences in the annual frequency of a specific birth defect may be due to random variability.

References and Community Resources

Statewide and county profiles of the most prevalent birth defects can be found at, [http://www.nj.gov/health/fhs/bdr/datum/] Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, [http://www.cdc.gov/ncbddd/index.html] Spina Bifida Association, 4590 MacArthur Boulevard, NW Suite 250, Washington , DC 20007, 800-621-3141 March of Dimes Foundation, 1275 Mamaroneck Avenue, White Plains, NY 10605, askus@marchofdimes.com, [http://www.marchofdimes.com], Tel: 914-428-7100, 888-MODIMES (663-4637), Fax: 914-428-8203 National Organization for Rare Disorders (NORD), P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT 06813-1968, orphan@rarediseases.org, [http://www.rarediseases.org], Tel: 203-744-0100, Fax: 203-798-2291

Page Content Updated On 10/29/2021, Published on 11/04/2021
The information provided above is from the Department of Health's NJSHAD web site (https://nj.gov/health/shad). The information published on this website may be reproduced without permission. Please use the following citation: " Retrieved Thu, 11 August 2022 20:18:10 from Department of Health, New Jersey State Health Assessment Data Web site: https://nj.gov/health/shad ".

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