LimbDef
limb deficiencies, limb reductions
LimbDef.Combined
Limb Deficiencies
Number of children born with either upper limb deficiencies and/or lower limb deficiencies per 10,000 live births to women residing in New Jersey in a specified time interval.
Number of children born with either upper limb deficiencies and/or lower limb deficiencies among live births to women residing in New Jersey in a specified time interval.
Count of all live births to women residing in New Jersey in a specified time interval.
10/29/2021
Upper and lower limb reduction defects occur when a part of or the entire arm (upper limb) or leg (lower limb) of a fetus fails to form completely during pregnancy. The defect is referred to as a "limb reduction" because a limb is reduced from its normal size or is missing.
While the causes of limb reduction defects are unknown, research suggests that certain behaviors or exposures during pregnancy can increase the risk of having a baby with a limb reduction defect. Risk factors include: exposure of the mother to certain medications, chemicals, or viruses while pregnant; and perhaps maternal exposure to tobacco smoke.
Early Intervention System:
The New Jersey Early Intervention System (NJEIS), under the Division of Family Health Services, implements New Jersey's statewide system of services for infants and toddlers, birth to age three, with developmental delays or disabilities, and their families. The Department of Health (NJDOH) is appointed by the Governor as the state lead agency for the Early Intervention System.
[http://www.nj.gov/health/fhs/eis]
Since 2008, NJEIS has regionalized the system's point of entry for referral of children, birth to age three, with developmental delays and disabilities. Families and health care providers can call 1-888-653-4463 to refer a child to the NJEIS.
NJDOH Family Health Services Case Management Units:
Each of New Jersey's 21 counties has a Special Child Health Services (SCHS) Case Management Unit. SCHS Case Managers, with parental consent, work with the child's parents and physicians to evaluate an affected child's strengths and needs; and develop an individual service plan for the child and family. Medical, educational, developmental, social and financial needs of the child and family are targeted.
NJ Department of Health,
Special Child Health and Early Intervention Services,
PO Box 364,
Trenton, NJ 08625-0364,
Phone: (609) 984-0755,
website: [http://www.state.nj.us/health/fhs/sch/]
Catastrophic Illness Relief Fund:
The Catastrophic Illness in Children Relief Fund is a financial assistance program for New Jersey families whose children have serious illnesses or conditions not covered by insurance, state or federal programs, or other funding sources.
Contact the Catastrophic Illness in Children Relief Fund Program:
1-800-335-FUND (3863)
Statewide and county profiles of the most prevalent birth defects can be found at, [http://www.nj.gov/health/fhs/bdr/datum/]
Centers for Disease Control and Prevention,
National Center on Birth Defects and Developmental Disabilities,
[http://www.cdc.gov/ncbddd/index.html]
March of Dimes Foundation,
1275 Mamaroneck Avenue,
White Plains, NY 10605,
askus@marchofdimes.com,
[http://www.marchofdimes.com],
Tel: 914-428-7100, 888-MODIMES (663-4637),
Fax: 914-428-8203
National Organization for Rare Disorders (NORD),
P.O. Box 1968,
55 Kenosia Avenue,
Danbury, CT 06813-1968,
orphan@rarediseases.org,
[http://www.rarediseases.org],
Tel: 203-744-0100, Voice Mail 800-999-NORD (6673),
Fax: 203-798-2291
SCHS
bgoun
A
11/01/2021
indicator initially created by REO; edits by BDG 9/23-27/10; new denom & rates 10/05-06/10 BDG;
Note- this indicator includes 2 NCDMs as per CDC EPHT (upper & lower limb). We felt the two measures would be better in one indicator than in two.
9/17/12 - added 2006 and 2007 data
7/31/13 - REO added 2008 data
8/7/2014 - REO added 2009 data
5/4/17 - REO updated 2000-2014 data
5/31/17 - REO added new birth defect registry county profile URL into Resources and References section of this indicator.
10/23/17 - REO added 2015 data
8/28/18 - REO added 2016 data and 10-year rate (2007-2016)
10/21/19 - REO added 2017 data
11/2/2020 - REO added 2018 data
10/29/2021 - REO added 2019 data
460
x
11/01/2021
Status changed by: bgoun
11/04/2021
LimbDef.Combined
Prevalence of Limb Deficiencies in Children Born to NJ Resident Mothers,
Upper and Lower Limb Deficiencies Combined, by Year, NJ,
2000 - 2019
Rate per 10,000 Live Births
LimbDef.County
Prevalence of Limb Deficiencies in Children Born to NJ Resident Mothers,
Upper and Lower Limb Deficiencies Combined, by County,
2010-2019
Rate per 10,000 Live Births