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Complete Health Indicator Report of Hypoplastic Left Heart Syndrome

Definition

Number of children born with hypoplastic left heart syndrome per 10,000 live births to women residing in New Jersey in a specified time interval.

Numerator

Number of children born with hypoplastic left heart syndrome among live births to women residing in New Jersey in a specified time interval.

Denominator

Count of all live births to women residing in New Jersey in a specified time interval.

Why Is This Important?

Hypoplastic left heart syndrome (HLHS), is a heart condition that is present at birth, and often is called a congenital heart defect. HLHS is a group of related heart defects that, together, mean that the left side of the heart is underdeveloped. There is no known cause for HLHS. The problem develops before birth when there is not enough growth of the left side of the heart. White babies seem to have higher rates of HLHS than babies of other races or ethnicities. Maternal multivitamin use before and during pregnancy appears to decrease the risk of HLHS.

Available Services

Early Intervention System: The New Jersey Early Intervention System (NJEIS), under the Division of Family Health Services, implements New Jersey's statewide system of services for infants and toddlers, birth to age three, with developmental delays or disabilities, and their families. The Department of Health (NJDOH) is appointed by the Governor as the state lead agency for the Early Intervention System. [http://www.nj.gov/health/fhs/eis] Since 2008, NJEIS has regionalized the system's point of entry for referral of children, birth to age three, with developmental delays and disabilities. Families and health care providers can call 1-888-653-4463 to refer a child to the NJEIS. NJDOH Family Health Services Case Management Units: Each of New Jersey's 21 counties has a Special Child Health Services (SCHS) Case Management Unit. SCHS Case Managers, with parental consent, work with the child's parents and physicians to evaluate an affected child's strengths and needs; and develop an individual service plan for the child and family. Medical, educational, developmental, social and financial needs of the child and family are targeted. NJ Department of Health, Special Child Health and Early Intervention Services, PO Box 364, Trenton, NJ 08625-0364, Phone: (609) 984-0755, website: [http://www.state.nj.us/health/fhs/sch/] Catastrophic Illness Relief Fund: The Catastrophic Illness in Children Relief Fund is a financial assistance program for New Jersey families whose children have serious illnesses or conditions not covered by insurance, state or federal programs, or other funding sources. Contact the Catastrophic Illness in Children Relief Fund Program: 1-800-335-FUND (3863)

Data Tables


Prevalence of Hypoplastic Left Heart Syndrome in Children Born to NJ Resident Mothers, Statewide Rates, 2000-2016

YearRate per 10,000 Live BirthsNumer- atorDenom- inator
Record Count: 17
20002.7732115,542
20011.4717115,769
20021.5718114,641
20031.9723116,823
20041.4016114,443
20051.6719113,651
20062.2726114,665
20071.6419115,920
20082.1324112,428
20090.647109,543
20101.4115106,571
20111.2313105,474
20121.3514103,778
20131.1712102,326
20140.889102,813
20151.2713102,021
20160.596102,472

Data Sources

  • Birth Certificate Database, Office of Vital Statistics and Registry, New Jersey Department of Health
  • Early Identification and Monitoring Program, Special Child Health and Early Intervention Services, Division of Family Health Services, New Jersey Department of Health


Prevalence of Hypoplastic Left Heart Syndrome in Children Born to NJ Resident Mothers, by County, 2007-2016

CountyRate per 10,000 Live BirthsNumer- atorDenom- inator
Record Count: 22
Atlantic**33,079
Bergen0.96994,058
Burlington**46,370
Camden1.831265,541
Cape May**9,150
Cumberland3.66821,832
Essex1.9521107,677
Gloucester**30,971
Hudson1.1912100,666
Hunterdon**9,757
Mercer**43,207
Middlesex1.111199,502
Monmouth**62,784
Morris1.03548,749
Ocean1.10981,656
Passaic1.681271,545
Salem**7,147
Somerset1.41535,472
Sussex**13,208
Union1.28970,047
Warren**10,002
New Jersey1.271351,062,420

Data Notes

**Counts and rates are suppressed when counts are below 5 due to instability of rates. Observed differences in the annual frequency of a specific birth defect may be due to random variability.

References and Community Resources

Statewide and county profiles of the most prevalent birth defects can be found at, [http://www.nj.gov/health/fhs/bdr/datum/] Centers for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, [http://www.cdc.gov/ncbddd/index.html] American Heart Association, National Center, 7272 Greenville Avenue, Dallas, TX 75231, (800) 242-8721 Congenital Heart Information Network, 101 N Washington Ave, Suite 1A, Margate City NJ 08402-1195, 609-822-1572 March of Dimes Foundation, 1275 Mamaroneck Avenue, White Plains, NY 10605, askus@marchofdimes.com, [http://www.marchofdimes.com], Tel: 914-428-7100, 888-MODIMES (663-4637), Fax: 914-428-8203 National Organization for Rare Disorders (NORD), P.O. Box 1968, 55 Kenosia Avenue, Danbury, CT 06813-1968, orphan@rarediseases.org, [http://www.rarediseases.org], Tel: 203-744-0100, Voice Mail 800-999-NORD (6673), Fax: 203-798-2291

Page Content Updated On 08/28/2018, Published on 09/11/2018
The information provided above is from the Department of Health's NJSHAD web site (https://nj.gov/health/shad). The information published on this website may be reproduced without permission. Please use the following citation: " Retrieved Mon, 17 June 2019 5:31:35 from Department of Health, New Jersey State Health Assessment Data Web site: https://nj.gov/health/shad ".

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